Patient resources
Metabolics
The Nutricia Learning Center features tools and educational resources for Metabolic Healthcare Professionals.
A useful resource guide for caregivers whose child has been recommended to use Periflex/Anamix Early Years for the dietary management of their unique metabolic disorder. The guide includes more about the formula, tips, including burping, traveling and emergency. Also within the guide are sheets to help keep track of feeding, diapering and sleep.
Starting with preconception all the way through lactation, this book provides tips for maternal PKU.
Metabolic low protein diet and formula recipe booklets.
Even minor illnesses can quickly escalate into emergency situations for people with MSUD, and so it’s important to be prepared. The front of this worksheet provides general tips for managing an emergency situation, and the back can be filled out with health information. Download here or request printed copies from your Nutricia Territory Manager.
This diet record tool can help patients keep track of food and formula consumption leading up to a clinic appointment or before blood work. It can also be used to help patients keep track of leucine/ protein intake day-to-day. Download the fillable PDF version here or request printed booklets from your Territory Manager.
Tools Enabling Metabolic Parents Learning are books and videos designed to help you provide simple education for the caregivers of your newly-diagnosed patients with inherited metabolic diseases. Resources also available to your patients on medicalfood.com. Available in English, Spanish and French.
Tools Enabling Metabolic Parents Learning are books and videos designed to help you provide simple education for the caregivers of your newly-diagnosed patients with inherited metabolic diseases. Resources also available to your patients on medicalfood.com. Available in English, Spanish and French.
Tools Enabling Metabolic Parents Learning are books and videos designed to help you provide simple education for the caregivers of your newly-diagnosed patients with inherited metabolic diseases. Resources also available to your patients on medicalfood.com. Available in English, Spanish and French.
Tools Enabling Metabolic Parents Learning are books and videos designed to help you provide simple education for the caregivers of your newly-diagnosed patients with inherited metabolic diseases. Resources also available to your patients on medicalfood.com. Available in English, Spanish and French.
Tools Enabling Metabolic Parents Learning are books and videos designed to help you provide simple education for the caregivers of your newly-diagnosed patients with inherited metabolic diseases. Resources also available to your patients on medicalfood.com. Available in English, Spanish and French.
Tools Enabling Metabolic Parents Learning are books designed to help you provide simple education for the caregivers of your newly-diagnosed patients with inherited metabolic diseases. Resources also available to your patients on medicalfood.com. Available in English and French.
Looking for additional handouts to provide patients and family members to help improve their understanding of PKU and the special diet? These ‘Guides to PKU’ are color downloads that are tailored to the audience to help others better understand PKU. We suggest printing copies or requesting prints from your Territory Manager.
Provide patients and family members these educational guides to help improve their understanding of HCU and their special diet. These ‘Guides to HCU’ are available to download or you can request prints from your Territory Manager.
Especially designed for adults with PKU, Nutricia’s PKU back-to-diet resource booklet includes Q&A, inspiring patient stories, a science refresher, and more.
Help school-age patients learn more about a low protein diet with these fun, educational, interactive activity books.
This easy to understand hand out provides families with instructions on how to mix Periflex & Anamix Early Years Formula and standard formula. Available in English & Spanish.
Starting with preconception all the way through lactation, this book provides tips for maternal PKU.
Download these Metabolic Disorder Fact Sheets to provide your patients will helpful information.
Recipes, Inspiring Stories, Nutricia Social Communities, and More
Connect with these National (US and Canada) family support groups.
- HCU Network America
- FOD Family Support Group
- National PKU News
- National PKU Alliance
- National Urea Cycle Disorders Foundation
- NORD (National Organization for Rare Diseases)
- MSUD Family Support Group
- Organic Acidemia Association
- Global Association for PKU
- Canadian PKU and Allied Disorders
- Propionic Acidemia Foundation
Find a family support group in your area.
- Mississippi Metabolics Foundation
- Arizona Network for PKU & Allied Disorders (ANPAD)
- Florida PKU Foundation
- Georgia PKU Connect
- Intermountain PKU and Allied Disorders
- Iowa PKU Foundation
- Minnesota PKU Foundation
- New England Connection for PKU and Allied Disorders
- PKU Organization of Illinois
- Tennessee PKU Foundation
- The Mid-Atlantic Connection for PKU and Allied Disorders (MACPAD)